Cystic Fibrosis
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10 minute documentary final project about a day in the life of a ten year old girl with Cystic Fibrosis
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10 minute documentary final project about a day in the life of a ten year old girl with Cystic Fibrosis
January 5th, 2012 - 19:55
eng.wavegenetic.ru
January 5th, 2012 - 20:44
Thank you for sharing Devon’s story and giving me a better understanding of the disease. This documentary has helped me understand how to treat a child with this disease while I am studying to become a dietitian. I am praying for Devon.
January 5th, 2012 - 20:51
Brief update on how Devon has been since this video was first uploaded. She is now 14 years old and just graduated 8th grade. This fall she starts high school at Delran. Health wise she has had her ups and downs but her positive attitude has outweighed the negatives. For anyone who has this terrible disease follow in the footsteps of Devon and realize one thing. This disease does not define the person. It is what that person does in the face of adversity that defines the person.
January 5th, 2012 - 21:39
Wow, what a horrible disease. That’s amazing that her and her family have been so on top of her diagnosis and treatment, I totally respect that.
January 5th, 2012 - 22:06
I have Cystic Fibrosis. I think that it’s so much easier to cope with when you keep a positive attitude.
January 5th, 2012 - 22:36
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook “make cystic fibrosis aware by trying to break a world record”. All support would be very greatful
January 5th, 2012 - 22:46
my 5 month old daughter has cystic fibrosis, she had 26 cm of her intestines tooken out for a intestinal malrotation. she weighs about 12lbs now and so far is doing fantastic. i hope they find a cure in her lifetime.
January 5th, 2012 - 23:26
I learnt two things from this video: gratitude and patience.
January 5th, 2012 - 23:52
do you have any news about this child’s current health? how is she doing now? she is very inspiring.
January 6th, 2012 - 00:12
That is sooo sad!
January 6th, 2012 - 00:58
@hopeandwork How does a feeding tube do anything but help? I’ve had a G tube for most of my life and it does more good than bad? And how is pulmozyme poison lolol…..I’ve had pulmozyme for most of my life too and I do better with than without, it depends on the person.
January 6th, 2012 - 01:36
@XBreatheXMichelleX My little guy has it. I agree. It’s very difficult to deal with.
January 6th, 2012 - 02:17
My son is two years old and has cystic fibrosis. We are Orion’s Army and are striving for a cure for cystic fibrosis. Please join us on facebook if your’e serious about helping to find a cure. Write to me if you’re interested.
January 6th, 2012 - 03:04
DO NOT DO A FEEDING TUBE!!!! THAT WILL LEAD TO OTHER ISSUES… FEEL FREE TO CONTACT ME IF YOU HAVE ANY QUESTIONS… PULMOZYME IS ALSO A POISON.
January 6th, 2012 - 03:38
my brother is 28 years old and has CF . its the worst fucking disease out there .
January 6th, 2012 - 04:07
@HaterzHere but in most cases, those parents don’t know they have those genes. you should read a bit about biology and genes before you say that! actually, it’s the system’s fault, because it does not provide the necessary tests so that each and everyone of us knows one’s genes.
January 6th, 2012 - 04:08
How is Devon doing?
January 6th, 2012 - 04:27
stupid mothe fucker. they can’t control thier genes. they should kill themselves
January 6th, 2012 - 04:57
love this please subscribe to my familys blogs our daughter has c/f our channel is about her and the rest of our family
January 6th, 2012 - 05:45
love this
January 6th, 2012 - 05:48
my 9 year old has it and ive recently found this social outlet for here there are vlogs about our home family if your intersted….love to see you! plz sub. im ditalydo
January 6th, 2012 - 06:35
RNpedia.com to know more about this..
January 6th, 2012 - 06:50
hm
January 6th, 2012 - 07:00
hi people, may i know….form those who are knowledgeable in CF…
does digestive enzymes prevent the indigestion problem…like no more constipation.and better absorbtion of fat soluble vitamins.
this is beacause,i think i have lived with cystic fibrosis.since yound, i have suffered from constipation and had respiratory problems.almost every week i have had to go for a 20 min long inhaler theraphy.where the substance expands my lungs…till today, constipation acne and breathe problems.
January 6th, 2012 - 07:49
@wasupitswill I have CFRD too, sorry only insulin helps.